You Conquered Sepsis! Now What?

It’s a slow and steady recovery process after sepsis and we urge you to take one day at a time. It will take some time to build up your strength and accomplish day to day tasks you once thought were nothing. Slowly build up your activities but don’t take on too much too soon. 

Symptoms of Post Sepsis Recovery

You are recovering from a very intense illness. You may experience the below symptoms upon returning home.

  • General to extreme weakness and fatigue
  • Breathlessness
  • General body pains or aches
  • Difficulty moving around
  • Difficulty sleeping
  • Weight loss, lack of appetite, food not tasting normal
  • Dry and itchy skin that may peel
  • Brittle nails
  • Hair loss
  • Feel unsure of yourself
  • Not care about your appearance
  • Want to be alone, avoiding friends and family
  • Have flashbacks, bad memories
  • Be confused about what is real and what isn’t
  • Feel anxious, more worried than usual
  • Experience poor concentration
  • Be depressed, angry, unmotivated
  • Feel frustration at not being able to do everyday tasks


Long-Term Effects of Sepsis

Some patients experience long-term effects of sepsis commonly known as Post Sepsis Syndrome. These problems might not become apparent for several weeks after treatment is completed  and might include such consequences as:

  • Insomnia, difficulty getting to or staying asleep
  • Nightmares, vivid hallucinations, panic attacks
  • Disabling muscle and joint pains
  • Decreased mental (cognitive) function
  • Loss of self-esteem and self-belief
  • Organ dysfunction (kidney failure, lung problems, etc.)
  • Loss of hands, arms, legs, or feet (limb amputation)


Ways to get involved with the Begin Again Foundation

It may be helpful in your recovery to join a community such as our foundation by lending a hand to others in need. The foundation is committed to not only helping those in need but also being a resource for those still in recovery that may want to help others. Below are ways you can become involved within the Begin Again Foundation that may help you throughout your healing process. 

Read stories of past survivors helped by the Begin Again Foundation by visiting our survivor stories blog. For additional sepsis survivors, visit sepsis.org’s faces of sepsis. 

Submit Your Story

If you want to share your sepsis story through our survivor blog to help others recover and learn the signs of sepsis please email genna@beginagainfoundation.com.

LEISHLine Financial Aid Fund

If you have not received a grant from the LEISHLine Financial Aid Fund we want to help you! We’ve established a fund to serve families suffering from Sepsis, ARDS, and Toxic Shock Syndrome to help offset uninsured expenses.

Become a Sepsis Ambassador

We are committed to spreading awareness about the signs and symptoms of sepsis. Our new Sepsis Ambassador program is a grassroots effort to inform communities around the country about what to look for when suspecting sepsis. If you feel want to help inform your community, look into becoming an ambassador! 

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Need Additional Resources?

Credit: https://www.cdc.gov/sepsis/life-after-sepsis/index.html